Messing up the show

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Randy B
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Re: Messing up the show

Post by Randy B » Thu Jan 17, 2008 12:45 am

Christine43 wrote:What bothers me is if I can teach my children to behave as well as they can, why oh why can't parents of kids without issues??? They have no idea how lucky they are and they don't care, it's criminal. Thanks for letting me vent. Christine
No prob on the vent.

Also I have noticed that it is now becoming the norm that "parents" are so busy in their daily lives that I often wonder that they are able to pick their child(ren) out of a crowd. If the "parent" rarely spends any time with their child and just leave all moral and behavioral training to others no such training ever happens. :mad: Then by the time they trot the kids out to show off (even if nobody is there to see or care) and the kids are behaving badly the "parent" just retreats into hiding or denying they know these little beasts.

And since the brats are much more noticable than the well behaved, many of us get a, maybe, unfair impression that all kids are brats.

For those of you out there who make an attempt to teach your children how to behave in public to the limits of the childs ability to learn and understand, I wish to applaud and give a thumbs up. :clap: :thumbup: Keep up the good work.

Randy



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Re: Messing up the show

Post by GaTechGal » Thu Jan 17, 2008 10:07 am

Christine,
When kids are misbehaving, it's always the behavior of the PARENTS that I roll my eyes at. If you are attempting to discipline your kids I'm right there behind you. Sometimes you just can't get them to stop on a dime. It's that parents that just sit there and let it to on that chap me.

Question - sometimes when kids are whining like that, I try and distract them by asking them about their trip or other stuff just to see if I can stop the whining or crying. Some times they just snuggle back towards mom since a "stranger" spoke to them (no joke about how I might be stranger than some please) and some times it actually works to distract them. Would that work for you sons?



Princess Susi
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Re: Messing up the show

Post by Princess Susi » Thu Jan 17, 2008 10:56 am

Christine43 wrote:What bothers me is if I can teach my children to behave as well as they can, why oh why can't parents of kids without issues??? They have no idea how lucky they are and they don't care, it's criminal. Thanks for letting me vent. Christine
HERE! HERE!
Christine43 wrote:I used to have this thing that I put on peoples' cars when they parked to close to me. It had an insulting message about their parking abilities but it also had Mickey Mouse with a big smile on his face flipping the bird. Now, I love Mickey as much as anyone but I still thought this was pretty funny. I would love to have that picture now but with a message defending my autistic children. Maybe I'll design one. I constantly try to educate people about autism but when that fails and they're still griping, out comes Mickey.
I have seen things like this. They are sooooooo...funny!
TechieSidhe wrote:That's a lovely idea. :) We were on the bus from Epcot to Coronado Springs when I was seated next to a very enthusiastic young adult who I believe was mentally handicapped (I'm not a medical professional, so I'm guessing.) He was very happy to be at Disney and expressed himself loudly. The mother was a special education teacher and I believe an absolute SAINT... He was interacting with his brothers and people kept giving him the worst looks. Sometimes I wish I could sprinkle a little Pixie Dust and make them spend a day in an mentally handicapped person's head so they could see how it feels when the brain and the will sometimes don't work together as planned.

DH and I were thinking that honestly, the mentally handicapped person was probably a better person than 90 percent of the people on the bus because at that moment, he was gifted with experiencing pure joy without the mental and emotional entanglements that neurotypicals carry around.
This is so true. That young person has the joy of a child and none of the worries and stress of an adult. While this can be a hazard in the *Real World*, it has to be a gift at Disney!!!!! How many of us wish we could just lose all the adult problems for a while at Disney? Isn't that why we go? :)
susi


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Re: Messing up the show

Post by Princess Susi » Thu Jan 17, 2008 11:03 am

GaTechGal wrote: When kids are misbehaving, it's always the behavior of the PARENTS that I roll my eyes at. If you are attempting to discipline your kids I'm right there behind you. Sometimes you just can't get them to stop on a dime. It's that parents that just sit there and let it to on that chap me.

Question - sometimes when kids are whining like that, I try and distract them by asking them about their trip or other stuff just to see if I can stop the whining or crying. Some times they just snuggle back towards mom since a "stranger" spoke to them (no joke about how I might be stranger than some please) and some times it actually works to distract them. Would that work for you sons?
Totally agree. It is the parents responsibility to keep their kids from misbehaving. I do not usually blame children for bad behavior (usually they are hungry, tired, have a wet diaper or all of the above and the parents are bent on MAKING them have a good time because they are spending a LOT of $$$ to be here, blah, blah, blah... :rolleyes: ). If someone were to tell me that their child was autistic, or *mentally challenged* or Down's which is more defined by body type, I would probably ask what I could do to help the mother, if she also had more children with her and/or she had her hands full.

That is because my husband's brother was severely disabled with a disease that made him *look* like he had Downs, but he did not. His head was the shape of a Down's person from the disease he had. He was not in any way mentally affected and was one of the most articulate and intelligent men I knew, but he *looked* different and people would stare! :mad: The disease caused severe growth deformities and he was the most vivacious and active person I knew with such a disease. He passed 2 years ago due to his heart muscle dying, which is what the disease was all about, destroying muscle. Having a family member that had such obstacles to overcome, makes one understand completely.

We all have our own *little disabilities* in life and we all need to be more accepting and tolerant of those who are much *different* than us.

I like what I heard someone say once. That these folks are actually God's Angels sent here to teach us to be more human and compassionate. Not everyone gets it. It was not so long ago that all people who were *otherly abled* than the *rest of us* were labelled with such demeaning and despicable words, like *retarded* and even the word *slow* pisses me off. It was this way for as long as I can remember. It was not only until more recently, the 1980's and 90's that we started differentiating in the various neurological and personality *disorders*. It has been a blessing that science has been moving faster in figuring out what exactly causes these things to occur. Not fast enough and not enough information yet, but it moves forward every day.

We have to thank the mothers of these children for what they do, for they ARE the front line in the fight for more answers about Autism and Downs and other disorders. Without the moms and families who stand strong in their fight, we would not be where we are in the studies. The push is huge from the family spectum!

I saw an ad on TV a couple days ago that showed that the chance of a child being born with Autism is now 1 in 150 births. That is an incredible rate. We MUST find what is doing this. The stats grow higher every day. Something in this world we live in is affecting these pregnancies and causing the genetic changes and we must find out what it is. That is the way to tackle it and lower that rate.

I have heard of more and more treatments that are having great results. And more and more celebrities (Jenny McCarthy comes to mind) are coming forward to share their stories and tell what they did to fight the battle. It seems when more celebrities come out of the woodwork, things start rolling faster, which should NOT be the way it is. It should be a major research project WITHOUT the celebrities! I know there ARE doctors behind the scenes fighting alongside families everyday to help with this disease, but you never hear about it, until a famous person has the problem.

Let's just hope that now this is at the forefront, we will have answers sooner than later!
sues


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Re: Messing up the show

Post by DisneyMom » Thu Jan 17, 2008 11:27 am

Again, WELL SAID!
It does bring a lot of attention to the problem when a celeb states that autism has affected their family, but to see the real magnitude of the increase in frequency, you all could go to one one the Autism Walks in a major city. If I recall correctly, there were 10,000 walking at WALK NOW
LA last April at the Rose Bowl. A HUGE difference from when my son was little and hardly anyone had heard of it except for when they watched Rain Man.
Susi and Ralph, I am so sorry to hear about your family member's passing.
I appreciate all of you who are interested in Autism, and want to help.


:flybongo: NO BULL!!!!!:D:

Christine43
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Re: Messing up the show

Post by Christine43 » Thu Jan 17, 2008 11:29 am

Randy B wrote:No prob on the vent.

Also I have noticed that it is now becoming the norm that "parents" are so busy in their daily lives that I often wonder that they are able to pick their child(ren) out of a crowd. If the "parent" rarely spends any time with their child and just leave all moral and behavioral training to others no such training ever happens.
For those of you out there who make an attempt to teach your children how to behave in public to the limits of the childs ability to learn and understand, I wish to applaud and give a thumbs up. :clap: :thumbup: Keep up the good work.
Thanks, I figure that's my job. I've always said that it's my job to produce decent human beings by the time they leave my side so I've emphasized kindness here at home. It's really distressing that so many parents don't teach their children just to be nice to others. The kids you describe above are the same kids that harass mine unmercifully. I can't tell you how many times I've been to the school over bullying and they have stopped it but I wish the parents of these kids would take the time to evaluate why their kids are doing this. Thanks for the thumbs up, I appreciate it.



Christine43
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Re: Messing up the show

Post by Christine43 » Thu Jan 17, 2008 11:39 am

GaTechGal wrote:Christine,

Question - sometimes when kids are whining like that, I try and distract them by asking them about their trip or other stuff just to see if I can stop the whining or crying. Some times they just snuggle back towards mom since a "stranger" spoke to them (no joke about how I might be stranger than some please) and some times it actually works to distract them. Would that work for you sons?
Well, sometimes and sometimes not. Perry, HFA, is distracted from the world already. He frequently scripts (meaning he'll repeat lines from a show or movie or even a commercial, he appears to be talking to himself which he technically is) and it can be difficult to bring him out of it. This was also happening on the bus so you can imagine the looks we got.
I do have ways to make him stop the "tv talk" (our pet name for it) and sometimes if another person talks to him he will respond. He doesn't do it constantly and you can have a limited conversation with him but eventually, he'll go back to it. But with the situation on the bus he was already upset and it would be very hard for someone he's not familiar with to be able to help him although boy, am I grateful when someone does or atleast lets me know they understand. It can be very hard on me because I love my son and it's horrible to have people look at him like he's a freak. Thanks!



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Re: Messing up the show

Post by Christine43 » Thu Jan 17, 2008 11:51 am

If someone were to tell me that their child was autistic, or *mentally challenged* or Down's which is more defined by body type, I would probably ask what I could do to help the mother, if she also had more children with her and/or she had her hands full.
Oh my God, you have no idea how awesome that would be. NO ONE has ever done that for me, not even my extended family who are another story altogether. You have no idea how much I would appreciate that, I think I'd cry.
He was not in any way mentally affected and was one of the most articulate and intelligent men I knew, but he *looked* different and people would stare! :mad: The disease caused severe growth deformities and he was the most vivacious and active person I knew with such a disease. He passed 2 years ago due to his heart muscle dying, which is what the disease was all about, destroying muscle. Having a family member that had such obstacles to overcome, makes one understand completely.
I'm so sorry. I totally understand about the staring.
We all have our own *little disabilities* in life and we all need to be more accepting and tolerant of those who are much *different* than us.

We have to thank the mothers of these children for what they do, for they ARE the front line in the fight for more answers about Autism and Downs and other disorders. Without the moms and families who stand strong in their fight, we would not be where we are in the studies. The push is huge from the family spectum!
You're right, some of the best advice I've gotten was from other parents.
I saw an ad on TV a couple days ago that showed that the chance of a child being born with Autism is now 1 in 150 births. That is an incredible rate. We MUST find what is doing this. The stats grow higher every day. Something in this world we live in is affecting these pregnancies and causing the genetic changes and we must find out what it is. That is the way to tackle it and lower that rate.
THANK YOU
I have heard of more and more treatments that are having great results. And more and more celebrities (Jenny McCarthy comes to mind) are coming forward to share their stories and tell what they did to fight the battle. It seems when more celebrities come out of the woodwork, things start rolling faster, which should NOT be the way it is. It should be a major research project WITHOUT the celebrities! I know there ARE doctors behind the scenes fighting alongside families everyday to help with this disease, but you never hear about it, until a famous person has the problem.
Although I am grateful that celebrities are coming forward with their stories, the problem with them is that they can afford around the clock help, the best doctors, intense therapy around the clock, etc. Most of the rest of us can't even dream of that.

Thank very, very much, Christine



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Re: Messing up the show

Post by Princess Susi » Thu Jan 17, 2008 12:17 pm

DisneyMom wrote:Again, WELL SAID!
It does bring a lot of attention to the problem when a celeb states that autism has affected their family, but to see the real magnitude of the increase in frequency, you all could go to one one the Autism Walks in a major city. If I recall correctly, there were 10,000 walking at WALK NOW
LA last April at the Rose Bowl. A HUGE difference from when my son was little and hardly anyone had heard of it except for when they watched Rain Man.
Susi and Ralph, I am so sorry to hear about your family member's passing.
I appreciate all of you who are interested in Autism, and want to help.
The mention of Rain man is interesting, because that is my nickname for Ralph. Since his accident was one of major head trauma, it did change him in many ways mentally. He takes some time to answer questions sometimes and is *slower* on the uptake. He also has some incredibly unusual preoccupations. He will look at anything with numbers and pick out the prime numbers or the natural numbers, he will add them up and figure out another aspect of the number. He is fascinated by palindromes. He also puts his paper money in his wallet not only according to denomination, but in serial number order! He is obsessed with numbers and is a great mathematician. He has some aspects of preocupicity such as you find in Aspergers and he cannot do more than one thing at once. If he is on the phone, he cannot also write or talk to someone else. He has to be completely immersed in one thing he is doing. I multi task up to 3 and 4 things at a time. He absolutely cannot do it. These are all impacts from his brain damage, but they mirror so many of Autism's symptoms, that it makes me wonder what part of the brain was damaged and how it was damaged to present this way.

He is not as preoccupied as Rain Man was, of course, but his compulsive behavior is noticeable and he must do everything in order. When he dresses, he has to do it exactly the same way, every time, or he gets confused. When he drives somewhere he gets lost easily, unless he goes the exact same way evertime. Things have to be done in order no matter what task it is, from laundry to writing out lists for everything (in his own little code language he made up ;) )to getting ready for bed the exact same way everytime. If one thng is out of order he gets confused. He had to relaern everyting in the hospital at age 21, so it may be that he is just doing things the exact way he was taught in the hospital and his brain cannot really adjust so easily to a ripple in the progamming. It is quite interesting and we talk alot about it.

It definitely stemmed from his brain injury. He is however extremely emo and has no problem showing emotion at all, ever. He can be overly emotional sometimes and wants hugs ALL THE TIME! He has a short temper when he feels like he is being *bugged too much* or when someone is trying to pull one over on him.
He also does not think out somethings before he says them and we have had a few embarassing moments with some of the things he has said in public. :eek: It is almost like there is no social filter there at times. Other times there is, but most of the time there is not. I have to coach him before we go out often to tell him what is proper social talk and what is not. It can get sticky when he lapses if there is a racial feel to the conversation and it HAS happened with our Black friends. Luckily they know us very well and understand his dilemma and laugh it off. It has never caused a serious problem in our circle of friends.

Only one time was there an extremely uncomfortable moment on a train trip we took and the conversation was going along smoothly at a shared table in the dining car and then he blurted out something, which caused a very unconfortable silence and then I quietly glossed the statement over and got the conversation moving again. But he does not MEAN to be rude or out of line. It just pops out sometimes and he does not know it is not such unnacceptable speech. It is never really outrageous, but a sort of undertone that he does not know is not quite polite. Baffling to most of us.
Brains are fragile things and we have along way to go in understanding how and why they work.
In the meantime, I love my Rain man because he is who he is and he is a loving, comapssionate person who has some effects from an accident that changed him in some ways.

It really is like dealing with a child sometimes too. He can be very childlike and I sometimes am put in a position of acting like a mother, which can get creepy. :eek: But that is not very often, thankfully. Life. We take it as we are given it and we do our best with the tools we have in our own personality make-up.
sues


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Re: Messing up the show

Post by Princess Susi » Thu Jan 17, 2008 12:26 pm

Disneymom, thanks for your words of kindness for Ralph's brother, Chris. He was a very special person and we miss him so much. In fact, one of the main reasons we bought this house here and equipped it with an elevator and made it 100% disabled accessible was because his brother was supposed to come live with us and have his own space downstairs and be able to come upstairs via elevator to spend time with us. We also knew we had problems with disability, at least Ralph did WHEN we moved in, mine developed after and we wanted it to be easy to get around in. But at the time we were building it, we designed much of the downstairs for Chris and his wheelchair. That is why we invested in such a large home and when Chris passed, it changed the whole timbre of living here. I can't take it. It is so empty and with Chris here, it would have been so fun and we would have has such stimulating coversations and played many games of Scabble and other mentally challlenging things. He was a bright light in our lives and we miss him greatly and this house is just not what it was supposed to be.
We need to move to get away from the emptiness that was supposed to be full of life. No one really knew how long Chris had, so we thought he could be with us for awhile, but he went downhill much more quickly thabn any of us thoought he would. He is with the Father now. He was a devout Christian and was not afraid to go to be with the Father. he was truly a blessed person, even with all the challenges he had.
sues


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