Stupid Guest Tricks

Hi there.......Coco, we aren't gonna make it to Epcot today...here's why....if any of you all would send some pixie dust our way, I'd appreciate it....

MJ had a full blown, not breathing seizure....she had never had one before, it started small (just in one arm), I called Andrew to come home, but before he got here, I had to call 911, so he arrived home to fire trucks, ambulances and 6 EMT types in our house... We spent all night at the ER, had a horrible drug reaction (BECAUSE THEY WOULDN'T LISTEN TO ME), tests showed nothing, we have to follow up with the neurologists this week. She is asleep now, we're gonna see how she feels when she wakes up to decide wheter or not to take her to see Mickey today. The Dr said it is ok if she seems up to it and Goodness knows she deserves it. So, now we have something totally new to worry about....my poor baby....

OMG....All the Pixie Dust I can Find as well as many prayers this evening for MJ and you and Andrew!!!! God Bless your little one. :...( PLease keep me updated. Rest assured the Soarin' gang at Epcot will "wish upon a star" tonight once I get word around. LOVE AND HUGS!

SoarWhoreCoCo wrote:OMG....All the Pixie Dust I can Find as well as many prayers this evening for MJ and you and Andrew!!!! God Bless your little one. :...( PLease keep me updated. Rest assured the Soarin' gang at Epcot will "wish upon a star" tonight once I get word around. LOVE AND HUGS!

Thank you so much and thanks for the beautiful card! MJ was asleep when I got it, but I'll show it to her in the morning. I was so bummed at not being able to meet you! Perhaps we can hook up this week, I'll PM you.

When we got home this morning we all passed out for about 6 hours and then got up and went to MGM for just a few hours (nothing strenuous, shows only) She is resting comfortably right now, of course everytime she twitches my blood pressure goes through the roof....Even though we knew seizures might be possible for her someday we weren't really prepared for it....I guess you can't ever be...We'll know more after we see a neurologist (hopefully next week) until then all we can do is pray for no more seizures. Thank you for all of your support, prayers, good wishes, pixie dust, etc.... I don't know what we would do wothout our Dinsey 'family' right now....

Our hearts and pixie dust go out to you on the west coast! We'll make sure Tink takes the first flight over from the Matterhorn ASAP. (After fireworks of course).

Just joining the pixie dust party. I hope MJ is feeling better soon.

I don't have access to pixie dust, but best wishes and fairy sparkles to MJ...

Well, crud.....Turns out there are only THREE ped nueurologists for all of Central FL...one of them had a cancellation for...... JULY 13th.....this month is gonna suck!

We are to watch her closely, call 911 if she seizes again, they told us which hospital to take her to and were assured that the neuro she is scehduled to see will come to the hospital if needed, otherwise it is a waiting game....

I did talk to her Physical Therapist this morning who had seizures so she was able to at least tell me sort of what MJ goes through when it is happening....This really sucks....

We also can't get in to see an Orthopedist for her new braces and wheelchair until July 19th. If you have special needs kids, I can give you one piece of advice, Don't move to Florida....Sigh.....

Thank you all for your support, I am sure I will be asking for it more as the month goes on.....

Contact your local Shriner's hospital to see if they can help. Kids with issues like your daughter's are their specialty. And, it’s free!

If you think Florida is bad, try Maui. The best way to look at Hawaii is it’s a third world country with amenities.

Our Mainland pediatric urologist sent detailed notes, drawings and MRI's so the local urologist would have a clue if our son had any emergency problems. The local guy took one look and said we must be from Mars. He’d never seen anything like what was shown and had no inclination to learn.

Mommytomjm wrote:Well, crud.....Turns out there are only THREE ped nueurologists for all of Central FL...one of them had a cancellation for...... JULY 13th.....this month is gonna suck!

We are to watch her closely, call 911 if she seizes again, they told us which hospital to take her to and were assured that the neuro she is scehduled to see will come to the hospital if needed, otherwise it is a waiting game....

I did talk to her Physical Therapist this morning who had seizures so she was able to at least tell me sort of what MJ goes through when it is happening....This really sucks....

We also can't get in to see an Orthopedist for her new braces and wheelchair until July 19th. If you have special needs kids, I can give you one piece of advice, Don't move to Florida....Sigh.....

Thank you all for your support, I am sure I will be asking for it more as the month goes on.....

I hate to say it, but with all my medical issues as a child I was very lucky to live near Boston. There are very few areas in the country (or world) with the facilities boston has.

Besides mass general you also have Childrens hospital and Floating Hospital that both cater to childrens needs and have some of the best doctors in the world working there.